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A Decade of Progress: My Journey as a Migraine Advocate

As I look back on the past 10 years, I’m struck by how far we’ve come in our collective quest for better treatment options and understanding of migraine. When I first began writing about my experiences with this condition, treatments were limited and often carried significant side effects. Fast-forward to today, and I’m thrilled to see the emergence of targeted therapies and innovative approaches that have transformed the lives of many.

The development of CGRP inhibitors has been a game-changer for those who previously had little hope of finding relief. These medications offer a new level of precision in targeting migraine pain, and I’ve been fortunate enough to personally benefit from some of these breakthroughs.

Beyond medical advancements, I’m proud to have played a part in shaping the conversation around migraine advocacy. As a writer and advocate for MigraineMedicine.org, I’ve had the privilege of sharing my story and amplifying the voices of others who are fighting for better care, awareness, and support.

One of the most impactful experiences of my advocacy journey has been participating in Headache on the Hill, an annual event that brings together patients, caregivers, and healthcare professionals to advocate for migraine and headache research funding, improved access to care, and better policies. I’ve had the honor of attending this event for four years now, and each year I’m inspired by the passion and dedication of my fellow advocates.

In addition to policy advocacy, I’ve found deep fulfillment in my work with Miles for Migraine, a organization that connects people living with migraine and provides a platform for us to share our experiences. One of my most meaningful projects has been compiling “Dear Migraine,” a book of personal reflections and artwork created by those affected by this condition. This labor of love not only raises funds for Miles for Migraine but also provides a space for people to share their stories, struggles, and triumphs.

Through my work on MigraineMedicine.org, I’ve had the privilege of learning from the community and amplifying our collective voices. Every story, comment, and shared experience has deepened my understanding of the many ways migraine impacts people’s lives. It’s reinforced the importance of advocating not just for better treatments but also for increased awareness, workplace protections, and improved quality of life.

Despite the progress we’ve made, I know that there is still much work to be done. Stigma surrounding migraine remains a significant barrier, and too many people are still suffering in silence, struggling to access care, or feeling dismissed by those who don’t understand the true burden of this condition. But I also believe that our collective efforts have created a brighter future for those living with migraine.

As I look to the future, I know that I will continue to advocate because no one with migraine should have to fight alone.

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